04, · e Basics Name: Eveline Honig Title: Executive Director Organization: Narcolepsy Network Disease focus: Narcolepsy is a chronic neurological disorder at can begin at any age and continues roughout life. It is a sleep disorder, involving irregular patterns in rapid eye movement (REM) sleep, and significant disruptions of e normal sleep/wake cycle. Narcolepsy Network was e only patient support group from e US in attendance. Narcolepsy Network was represented at e annual SLEEP meeting by staff members Christine Hackenbruck, Dr. Eveline Honig, and Board of Directors member Luis Ortiz. For e inural World Narcolepsy Day, we asked you to share your story and you delivered! e Latest in Narcolepsy Researchand Treatments. Special Guest: Dr. Emmanuel Mignot, MD PhD Director, Stanford Center for Narcolepsy & Chair, NN Medical Advisory Board. NetWorking. Eveline v.V. Honig MD MPHExecutive Director, Narcolepsy Network. Living Well wi Narcolepsy. Mali Einen Clinical Research Coordinator, Stanford Center for. Eveline Honig wi students communications challenges on behalf of companies and organizations nation-wide, while e single most important cause for me — Narcolepsy — needed my skills, she explained. Hence e idea for e Narcolepsy Aeness Campaign project was born. Narcolepsy Network is quite lucky at Dr. To e narcolepsy community, ese are trying times wi e spread of e COVID-19 virus. We want you to know at we at Narcolepsy Network are here working from home and are ready to assist anyone to e extent possible. Our hearts go out to everyone affected by is pandemic. Executive Director Eveline Honig and Communications Director Karen Rorie also attended e meeting as did several Board members and most of our medical advisory board. Narcolepsy Network had an exhibitor’s boo at e meeting where we passed out information about narcolepsy and about e Network to hundreds of people, most of em sleep. m Regards, Eveline Honig On 24, more an 500 people wi narcolepsy will participate in a public meeting on narcolepsy at e United States Food and Drug Administration (FDA). 13, · Updates from SLEEP I returned from e big meeting of sleep professionals in (surprisingly) sunny Seattle a couple of weeks ago and I have some interesting news about a potential new treatment option for narcolepsy. It’s still in clinical trials, so not available to e public yet, but e results look promising. Fair ning, Missing: Eveline honig. Eveline Honig, MD, NN Executive Director (left) and Patricia Higgins, RN, NN Board of Trustees President (right) representing Narcolepsy Network at e New York State Association of School Nurses annual meeting on ember 6, 20 Network Sponsored Summer Picnics. Apr 26, · What can e Narcolepsy Network to do help em? Eveline Honig, MD, MPH: Support is so important. In e dor’s office, where ey go once every 3 mon s or so, ey get 15 to 30 minutes to discuss eir condition, but ey really need help in so many o er areas of life. So at e Narcolepsy Network, we provide all kinds of services. We have an annual conference. Global Genes mission is to connect, empower and inspire e rare disease community. Learn more about our events, resources and communities.Missing: Eveline honig. If you want to find out what it is like to have narcolepsy, you must read Wide Awake and Dreaming. –Eveline Honig, M.D., M.P.H. Executive Director, Narcolepsy Network, Inc. ie is all about helping o ers to empower emselves. to make eir journey into e unknown a little less scary an it . Each year NN hosts a conference in a different city, which creates a unique ga ering for support, education, aeness building and networking among people affected by narcolepsy. A selection of workshops, lectures, support forums, energizers and creative activities are . 19, · Approximately 1 in 2,000 have been diagnosed wi narcolepsy in e US. e public's general knowledge of narcolepsy is often limited, making e disorder misunderstood, said Eveline Honig, MD, Executive Director of Narcolepsy Network. Patients are often misdiagnosed or wait several years to be diagnosed. 27, · is meeting is quite an historic event, said Narcolepsy Network Executive Director Eveline Honig, MD, MPH. is is one of e first times at e FDA has sought patient input on living wi a disease and e available treatments. Join Facebook to connect wi Eveline Honig van Veldhuisen and o ers you know. Facebook gives people Jump. Sections of is page. Accessibility Help. Press alt + / to open is menu. Narcolepsy Network. ember 2004 to present. Narcolepsy Network Inc. Executive director. Education. Columbia University. Class of 1991. New York. Narcolepsy Network is announcing eir new Patient Education Webinar series! k your calendars for Saturday, 30 at 11am PST, 2pm EST. ere is no cost to join is webinar. ere will be a short -minute break in between each session to get up and stretch. Webinar Schedule: Welcome - Dr. Eveline Honig and Dr. Luis Ortiz. e mischaracterization of narcolepsy in our culture fuels e stigma associated wi e disorder, which is detrimental to e narcolepsy community and fur er isolates people living wi narcolepsy, said Eveline Honig, M.D., M.P.H., executive director of Narcolepsy Network, a national patient support organization dedicated to education and support for e community. 06, 20 · Eveline Honig, MD, executive director of e Narcolepsy Network, talked to Sleep Review about e organization’s upcoming 25 Annual Patient Conference, ober 8-, 20, in Arlington, Va. e conference brings toge er narcolepsy patients, eir families, and experts, providing patients wi e opportunity to learn how to better live wi e disorder. Contact: Eveline Honig, MD, 914-741-5680, 914-319-9743 cell, [email protected] NOR KINGSTOWN, R.I., y 2 /Standard Newswire/ e Narcolepsy Network today released e following statement. Just days before e manufacturer of e narcolepsy medication Xyrem made an initial public offering of its shares, e New York Times and two affiliates published an article at was bo. 20, · Session description: To k e inural World Narcolepsy Day, t 22, leaders of narcolepsy non-profit patient organizations will share programmatic highlights, best practices and key insights from e front lines. Clinicians, researchers and patient community members will learn about e latest resources from non-profit sector while. Inheritance of narcolepsy. e risk for e first-degree relative to develop narcolepsy type (NT1) is 1-2. It is -40 fold higher an in e general population to develop excessive daytime sleepiness (EDS) 4-5. A patient who is already pregnant. e advices are dependent on e stage of pregnancy.Missing: Eveline honig. ie wi NN Executive Director, Eveline Honig at SLEEP . Narcolepsy Network Boo SLEEP Boston, MA. ie meeting fellow narcolepsy advocate, Katie for e first time in person! SLEEP . Tagged as: American Academy of Sleep Medicine. Narcolepsy Support Group. A sleep disorder (somnipa y) is a disorder in e sleep patterns of a person or animal. Some sleep disorders can interfere wi mental and emotional function. If you are having trouble falling asleep or having some o er kind of sleep disturbance, is group is for you.Missing: Eveline honig. Apr 29, · Michael J. orpy, MD: What are you hearing, Eveline, from patients about unmet needs in narcolepsy?What are patients really looking ford to regarding e future management of narcolepsy? Eveline Honig, MD, MPH: ere’s always been e complaint at ere are not enough medications available.It takes forever to get a medication approved. Narcolepsy Network Inc N. Narcolepsy Network Inc Contacts Eveline Honig . Contact Business. Your Email Address Subject: Message. Send Message. Company Sum y. Narcolepsy Network Inc is located at 129 Waterwheel Ln in Nor Kingstown and has been in . For Eveline Honig, MD, MPH, executive director of e Narcolepsy Network, patients have always complained about e lack of medications available to em, and rightfully so, as ey and eir physicians have fewer an options from which to choose. It takes forever to . Apr 29, · Dr. Eveline Honig, executive director of e Narcolepsy Network, a nonprofit national patient support organization, acknowledges e challenges Harper faces in developing his group. Raising aeness is very important because it's still a very unknown disease, said Dr. Eveline Honig, executive director of e Narcolepsy Network. Most people by now know it's about people. Narcolepsy Network Conference . People wi Narcolepsy and Circadian Sleep Disorders have similar issues: bo are real, neurological problems and are often misdiagnosed as pri y insomnia, depression, ADHD, or chronic fatigue. Updates from SLEEP I returned from e big meeting of sleep professionals in (surprisingly) sunny Seattle a couple of weeks ago and I have some interesting news about a potential new treatment option for narcolepsy. It’s still in clinical trials, so not available to e public yet, but e results look promising. Fair ning, is post is going to have a lot of research in it, so if Missing: Eveline honig. A wonderful recommended must read for everyone! ie is a natural story teller. Eveline Honig, M.D., M.P.H. Executive Director, Narcolepsy Network, Inc. ie shares her story brilliantly. She relates e details in such a way, at it is an easy read wi snippets of humor added. is, I believe, makes her an ideal spokesperson for narcolepsy.Reviews: 460. Apr 15, · Michael J. orpy, MD: So once we’ve actually been able to make a diagnosis of narcolepsy, en we need to treat it.Russ, what are e goals of treatment in narcolepsy? Russell Rosenberg, PhD, DABSM: Well, we’ve talked about a number of e symptoms, so what we want to do is improve at patient’s functioning.I ink we want everyone watching is to absolutely understand at . PLYMOU MEETING, Pa. 9, which is detrimental to e narcolepsy community and fur er isolates people living wi narcolepsy, said Eveline Honig, M.D., M.P.H., executive director. Eveline Honig, MD, Narcolepsy Network Rebecca King, Hypersomnia Foundation k Patterson, MD, Day4Naps. Session description: To k e inural World Narcolepsy Day, t 22, leaders of narcolepsy non-profit patient organizations will share programmatic highlights, best practices and key insights from e front lines. Clinicians. as a so-called date rape drug. Eveline Honig, executive di-rector of Narcolepsy Network, noted at one dor in a rural area had been prescribing Xyrem to a young man but lined to do so once e patient went to college, citing his concern at e drug might be taken by o ers. Xyrem was approved in 2002 wi restrictions on its use, which. 09, · e mischaracterization of narcolepsy in our culture fuels e stigma associated wi e disorder, which is detrimental to e narcolepsy community and fur er isolates people living wi narcolepsy, says Eveline Honig, MD, MPH, executive director of Narcolepsy Network, a national patient support organization dedicated to education. Apr 21, · Michael J. orpy, MD: You really need to have comprehensive management of a patient diagnosed wi narcolepsy, and it’s important to deal wi e lifestyle, psychosocial aspects as well.Wi regard to e medications, Alon, what medications do we currently use for narcolepsy? Alon Y. Avidan, MD, MPH: e traditional medications for narcolepsy have been psychostimulants, which have . e public's general knowledge of narcolepsy is often limited, making e disorder misunderstood, said Eveline Honig, MD, Executive Director of Narcolepsy Network. Patients are often. 15, · PascoeM, Carter LP, Honig E, Bena J, Foldvary-Schaefer N. Pregnancy and contraception experiences in women wi narcolepsy: a narcolepsy network survey. J Clin Sleep Med. .15:1421–1426. Access content. e Know Narcolepsy(TM) survey, conducted by Versta Research among a total of 1,654 respondents on behalf of Harmony Biosciences, LLC, in collaboration wi patient advocacy organization, Narcolepsy Network, highlighted at narcolepsy is life-changing for e majority (86 percent, n=172) of ose surveyed living wi e disorder.Missing: Eveline honig. Narcolepsy Network (NN) and e entire narcolepsy community have long worked to dispel my s and misunderstandings about narcolepsy. When Honda Motor Company released a TV commercial using narcolepsy as a punch line, e community quickly and effectively lobbied to have e ad pulled from e airways and e Internet.Missing: Eveline honig. PLYMOU MEETING, Pa. 9, /PRNewswire/ Results of a ree-part survey of ose living wi narcolepsy (n=200), treating physicians (n=251) and e general public (n=1,203) bring to light e serious impact of is rare, chronic neurologic disorder on daily life. e Know Narcolepsy(TM) survey, conducted by Versta Research among a total of 1,654 respondents on behalf of Harmony Missing: Eveline honig. , · Proceeds were shared between Narcolepsy Network, e oldest narcolepsy patient support organization in e U.S., and Wake Up Narcolepsy a nonprofit advancing narcolepsy aeness and treatment. Narcolepsy is a neurological sleep disorder at often takes years to properly diagnose, says Jeray, who has e disorder.